Click the tabs to learn more about the Tuberculosis Working Group:
Click the tabs to learn more about the Tuberculosis Working Group:
The TB Working Group enhances NGO capacity to design and implement quality TB programs, with a focus on community-oriented programming.
Gagik Karapetyan, World Vision
Devasena Gnanashanmugam, Independent
Petra Stankard, Population Services International
*CORE Group representatives on STOP TB's Advocacy, Communications and Social Mobilization activities/groups: Kayt Erdahl and Elena McEwan, Catholic Relief Services. Dr. McEwan also serves on the Civil Society GAVI Steering Committee
CORE Group’s TB Working Group maintains a consistent—some might say relentless—focus on community-based TB programming. Just a few years ago, TB control was typically managed by “National Tuberculosis Programs” (NTPs), independent government entities, often separate from even the Ministry of Health. This top-down, biomedical model is evolving however, in response to the advent of HIV (TB being the biggest killer of people with HIV), the resulting resurgence of TB, the emergence of multi-drug resistant TB, and a growing understanding of the value of civil society involvement in health efforts.
Obviously, those already active in CORE Group's Community Health Network believe in the effectiveness and efficiency of social and community mobilization, behavior change communications, and patient-centered approaches. In the TB world, these kinds of ideas are often lumped together under the rubric of “Advocacy, Communications and Social Mobilization.” ACSM includes community-oriented efforts to educate the public, reduce stigma, identify likely cases of TB, minimize infection, refer suspects for diagnosis, deliver test results, and support curing of patients as they take medication on a daily basis for as long as several years—in close collaboration with government health systems.
As a relatively new set of activities within the TB world, many gaps exist in understanding how to best use community-level efforts to identify, cure and prevent TB. The data is even thinner with regards to TB and women, children and/or HIV-positive people, especially in low-income settings.
CORE Group’s TB Working Group is helping to identify and fill those gaps. We produce a range of resources, including community-based program design guidelines and case studies, and explore best practices in TB/HIV integration. Here’s a sampling of what we currently have in the works:
Do any of these issues interest you? We welcome all to join our listserv, welcome suggested updates to this page and are interested in your opinions and ideas on community-based TB and TB/HIV efforts. Email Ann Hendrix-Jenkins at: firstname.lastname@example.org
In support of World TB Day 2012 spotlight on Pediatric TB, CORE Group’s Tuberculosis Working Group presented three webinars from world leaders in the fight against pediatric TB:
Childhood TB: An MSF Field Perspective (3/13/2012)
Tuberculosis that is “resistant to all drugs”
Global reporting on what is being called “totally drug resistant TB” (TDR-TB) is causing alarm and confusion. WHO has provided guidance on their findings on this topic. For now, they do not recognize the “TDR-TB.” Find out why, and what this means for TB control efforts worldwide.
Women and Tuberculosis: Taking Action Against a Neglected Disease
Tuberculosis is the third leading cause of death for women worldwide, according to the World Health Organization, but what can we do about it? Find out in this concise, current overview from Action/RESULTS.
Chehera: The human face of TB
This beautiful and moving series of artworks created by people with TB can be used to get attention, raise awareness, and generate dialogue.
Online Presentation: >Pediatric Tuberculosis: Missed Opportunities. A South African Perspective.
Presented by Dr. Anneke Hesseling, Professor and Director, Pediatric TB Research Program, Desmond Tutu Research Centre, Stellenbosch University, South Africa. June 8, 2011.
Dr. Hesseling shares her clinical expertise AND her practical programming experience in addressing pediatric TB is low resource settings. Despite the difficulties of diagnosing and treating pediatric TB, Dr. Hesseling makes the case that practical, effective approaches do exist, in accordance with guidelines from the World Health Organization. Dr. Hesseling maps out ways forward, which are urgently needed to address this huge, neglected problem.
Online Presentation: Gene XPert. A groundbreaking new diagnostic technology for diagnosing TB:
Presented by Dr. Elizabeth Talbot, Associate Professor of Infectious Diseases and International Health at Dartmouth Hitchcock Medical Center, and Medical Scientist, FIND: Foundation for Innovative New Diagnostics. March 25, 2011.
Stop TB PartnershipTB/HIV Working Group
Transforming the HIV/TB Response: Defining the next 10 years
The Stop TB Department of WHO, in collaboration with Georgetown University, organized a high level international consultation on behalf of the TB/HIV Working Group of the Stop TB Partnership, in conjunction with the AIDS 2012 conference in Washington DC on July 21, 2012. The aim of the meeting was to discuss innovative ideas and ways to define and shape the global TB/HIV response for the next decade. It also harvested experiences and identified key challenges and barriers in the scale-up of collaborative TB/HIV activities, including key research gaps.
Why aren't children with tuberculosis getting the attention and care they deserve? CORE Group’s TB Working Group has decided to focus special attention on this issue to accelerate community-based approaches to pediatric TB care and prevention.
October 2011 - The World Health Organization (WHO) reports for the first time that the number of people falling ill with tuberculosis (TB) each year is declining. New data, published today in the WHO 2011 Global Tuberculosis Control Report, also show that the number of people dying from the disease fell to its lowest level in a decade. Yet, current progress is at risk from under-funding, especially efforts to combat drug-resistant TB.
"Written by and for trainers...planning and organising participatory educational sessions with community leaders or organised groups to raise awareness and promote practical action to challenge HIV and TB stigma and discrimination. Can be used alone or with accompanying HIV Stigma materials." STAMPP, CREATE and International HIV/AIDS Alliance, 2009- See local organization project descriptions, posted below, March, 2011
Lessons Learned from TB Work with People Living with HIV. Includes descriptions of integrated interventions and good practice standards
Improving Adherence to Treatment Patients not taking medicine is a chronic barrier to good health. How can we frame the issue and address it effectively? Presentation by Ira Wilson, Professor of Community Health, Brown U, January, 2011.
CORE Group's report out from the annual meeting of the International Union Against Tuberculosis and Lung Disease. Posted December, 2010. (Scroll down to Union Conference Reports.)
Overviews of older USAID Grants CORE Group NGO member organizations are/have implemented--description, outcomes, constraints and lessons learned:
CORE Group has regularly hosted a booth and participated in the annual meeting of The International Union Against Tuberculosis and Lung Disease. Reports from this meeting document the progress being made in this fast-moving field over the past several years.
CORE Group helps NGOs and governments effectively reach the community level, integrate community strategies into the national health plan, and respond to new and emerging health issues that arise so that preventable deaths from diseases like pneumonia and measles can be reduced.